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Introduction to Caregiving
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Caregiver Frequently Asked Questions

    NJ Care Management Services    Caring for Adults Living at Home
    Help with Insurance    Legal and Regulatory Services
    Transportation    Support Groups and Support Services
    Caring for Adults Who Do Not Live at Home or Need Alternatives to Living at Home    Help with Disability Issues
    Help with Bills and Finances  
   

 

   

New Jersey Care Management Services

Is there an agency or program that can help my family find out what we need to know in order to care for our mother?

Every county in New Jersey has an Area Agencies on Aging (AAA) - sometimes called County Office on Aging or Senior Services - which provides care management services free of charge to help people like you assess care needs for an elderly relative or friend and create a care plan for that individual based upon a comprehensive assessment. Care planning and management services can include: a professional assessment; defining care needs; arranging home care or care services; locating existing community resources; discussing ways to pay for elder care; case monitoring; advocacy of client's rights, and follow-up.  In addition, there are private geriatric care managers who provide care management services for a fee.

Where is the closest Area Agency on Aging?

You can find your local AAA by visiting the AAA web page, or by calling the New Jersey Easy Access, Single Entry (NJEASE ) toll-free information and assistance number at 1-877-222-3737.  NJEASE is a county-based system designed to provide easy access to and coordination of services for older residents of New Jersey and their caregivers. Services, including care assessment and care management, are accessed through your local AAA.

How do I know what AAA services are available to me or my relative?

Contact your local AAA and ask that their care management staff do an assessment for you or your relative. Following this assessment and an income determination, the care management staff will explain the available services to you.

How long will the AAA assessment process take?

The time required varies from county to county and is dependent upon their ability to schedule you or your relative for an appointment. It is important to call immediately if you have concerns and want a home visit to assess the situation.

I am willing to pay a private geriatric care manager to plan care for my mother. How do I find the nearest geriatric care manager in my county?

A geriatric care manager helps coordinate and manage the care of a frail older adult.  He or she will conduct an assessment to identify problems, and then determine eligibility for needed services, coordinate medical needs -- physician contacts, home health, other necessary screening and monitoring of in-home help -- review financial or legal issues to provide appropriate referrals, community resources, crisis intervention, assistance with relocation, etc. Contact your local AAA for information.

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Help With Bills and Finances

Does New Jersey offer any programs to help seniors pay for their prescription medications? Where do you get information and applications for this program?

New Jersey currently offers two programs to help low- and moderate-income seniors with the cost of prescription medications - Pharmaceutical Assistance to the Aged and Disabled (PAAD) and the Senior Gold Prescription Discount Program.

What is PAAD and who is eligible for this program?

PAAD helps eligible New Jersey residents pay for prescription drugs, insulin, insulin needles, certain diabetic testing materials and syringes and needles for injectable medicines used for the treatment of multiple sclerosis. Participants pay a co-pay of $5.00 per prescription and the program pays the remaining cost.

To be eligible for PAAD, the applicant must be a New Jersey resident; have income in 2007 of less than $22,572 if single, or less than $27,676 if married; and be at least 65 years of age or at least 18 years of age and receiving Social Security Disability benefits.  The income limit for PAAD increases each January by the amount of the Social Security cost-of-living increase.  To get an application, call 1-800-792-9745.

Please Note: PAAD participants who have Medicare must enroll in a Medicare prescription drug plan.

What is the difference between PAAD and Senior Gold?

Senior Gold provides prescription drugs, insulin, insulin supplies and diabetic testing material to eligible New Jersey residents for a participant co-pay of $15 per prescription plus one half of the cost of the prescription.  Participants with out-of-pocket prescription costs exceeding $2,000 a year if single and $3,000 a year for married couples will have 100% of their prescription costs paid after paying the $15 co-payment per prescription.

To be eligible for Senior Gold, the applicant must be a New Jersey resident; have an annual income in 2007 between $22,572 - $32,572 if single, and $27,676 - $37,676 of combined income if married; and be at least 65 years of age or at least 18 years of age and receiving Social Security Disability benefits.  The income limit for Senior Gold increases each January by the amount of the Social Security cost-of-living increase.  To get an application, call 1-800-792-9745.

Please Note: Senior Gold participants may enroll in a Medicare prescription drug plan but are not required to do so. Keep in mind, however, that Medicare does not consider Senior Gold to be creditable coverage. This means that if you choose not to enroll in a Medicare prescription drug plan when you first become eligible, and decide you need this coverage at a future date, you will pay a 1% penalty for every month you were not enrolled. So, if you decide in two years that Senior Gold alone is not working and you now need a Medicare prescription drug plan, you will be paying 24% more for that plan (1% penalty X 24 months) than your neighbor who enrolled when he or she first became eligible for Medicare.

Where can I get help preparing my parent's tax returns?

Either Volunteer Income Tax Assistance (VITA) or Tax Counseling for the Elderly (TCE) may be able to provide the help you are looking for.  Contact your local AAA for information on VITA and contact your local AAA or visit the AARP website for more information on TCE. Both programs are in operation during the tax season only.

Does my father qualify for any assistance with his utility bills?  He is 87, lives alone, and his only source of income is his Social Security.

It is likely that your father would qualify for assistance from one or more of the following programs:

The N.J. Department of Community Affairs, Division of Housing and Community Resources administers the Low Income Home Energy Assistance Program ( LIHEAP) that provides subsidies to cover the cost of heating or cooling to eligible low-income families and individuals. Contact your local AAA for information, or call the hotline at 1-800-510-3102.

The N.J. Department of Community Affairs, Division of Housing and Community Resources administers the Weatherization Assistance Program designed to promote energy conservation in low-income households. Contact your local AAA for direction to the designated local agency or call the Weatherization Program at 609-292-6140.

Lifeline is a utility assistance program that offers $225 to persons who meet the PAAD eligibility requirements or who receive Supplemental Security Income (SSI). This includes utility customers as well as tenants whose utility bills are included in their rent. Only one tenant in a household is entitled to this assistance. To get an application, call 1-800-792-9745.

New Jersey SHARES (Statewide Heating Assistance and Referral for Energy Services) is an energy fund for individuals and families who are in need of temporary help paying for their energy bills. For more information call 1-866-657-4273.

Gift of Warmth is a program that provides temporary assistance with the cost of natural gas to eligible low income individuals.  This program is only available to New Jersey Natural Gas customers.

New Jersey has instituted a permanent Universal Service Fund (USF) to assist low income individuals and families with the cost of energy. Eligibility will be determined when application for other assistance programs is completed.

Communications Lifeline is a program through Verizon Telephone Company that discounts telephone service for eligible residents whose telephone use is very limited. Eligibility will be determined when application for other assistance programs is completed.

Link Up America is a Verizon Telephone Company program that provides a 50% discount on telephone connection charges for persons meeting the eligibility criteria of certain programs, including PAAD.

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Help with Insurance

We need help understanding my mother's Medicare insurance. Where should we go?

The State Health Insurance Assistance Program (SHIP) provides free help to New Jersey Medicare beneficiaries who have problems with, or questions about Medicare supplement policies, long-term care insurance policies, benefits or claims. Volunteer counselors, trained in areas of health insurance coverage and benefits that affect Medicare beneficiaries, evaluate health insurance needs and provide information and assistance for dealing with claims.  Contact SHIP at 1-800-792-8820 or your local AAA, and a trained volunteer will be able to provide telephone assistance.

What is the difference between Medicare, Medigap and Medicaid?

Simply put, Medicare is the national health insurance for people over 65 and certain disabled people under 65. It comes in two parts: "Part A" covers hospital expenses while "Part B" covers doctor bills and other medical expenses.  Medigap insurance is designed specifically to supplement and complement Medicare benefits by filling in some of the gaps in coverage.  Medigap insurance policies are non-group policies that may pay for Medicare deductibles, prescription drugs, or other services not covered by Medicare.  Medicaid is a government health insurance program for low-income individuals.  Medicaid covers a wide range of health care services including the cost of long-term care for individuals meeting program clinical and financial eligibility requirements.

What is long term care insurance?

Long Term Care Insurance is a type of insurance policy designed to cover long-term care expenses in a facility or at home. Neither Medicare nor Medigap insurance will pay for these expenses. For more information contact the State Health Insurance Assistance Program or your local AAA.

Who should I call if my mom, who is a Medicare beneficiary, is denied services by a doctor or other healthcare professional?

Healthcare Quality Strategies, Inc. (HQSI) monitors the quality of care Medicare patients receive from doctors, hospitals, home health agencies and nursing homes. They may be contacted by calling 1-800-624-4557.

Can older adults get a discount on auto insurance?

Insurance companies may offer discounts on automobile insurance policies for New Jersey drivers 65 or older. Contact your auto insurance company for more information.

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Caring for Adults Living at Home

Are there any state programs that help people care for their aging parents in their own home rather than in a nursing home?

The New Jersey Division of Aging and Community Services administers a number of programs and services to help individuals receive care in the community rather than in a nursing home setting when appropriate.  These in-home services may include home health aide, home delivered meals, transportation, adult day care, and respite care for family caregivers.  These services are available to income-eligible individuals age 60 and older.  Contact your local AAA for more information.

Which program helps people on Medicaid living at home to remain in their homes?

There are a number of state and federal (i.e. Medicaid Waiver) programs with special eligibility for people aged 65 and older, or disabled who require nursing facility level of care but may be served in a less restrictive environment. Contact your local AAA for more information.

Is there a program like CAP for older adults with incomes or assets above the Medicaid limits?

Jersey Assistance for Community Caregivers (JACC) is a program of home-based services for nursing home eligible seniors who are not eligible for Medicaid or Medicaid Waiver services. Contact your local AAA for more information.

I'm concerned my dad may not be eating right.  Can I get meals delivered or arrange for him to go out to a senior center for a nutritious midday meal?

Home delivered meals are hot and nutritious meals delivered to homebound persons at least five days a week, and up to seven days a week for some participants. A needs assessment is required, but there are no strict income requirements.  Congregate meals offer at least one hot and nutritious meal daily to persons 60 years and older and are provided in local senior centers, schools and churches in New Jersey. Along with meals, these sites offer counseling, socialization and other services.  Contact your local AAA.

What are the benefits of social adult day care?

Social Adult Day Care provides care and activities for those who are not capable of full time independent living. The program emphasizes social and recreational activities in a group setting, with some health and medication monitoring. Services may include personal care, assistance with eating or using the toilet, assistance with taking medications, therapies and social activities. Social Adult Day Care Facilities are not licensed by the State of New Jersey but must meet all local and building code requirements.

What if my mom needs medical help, too?

Adult Day Health offers medically supervised, health-related services to Medicaid-eligible individuals who do not require 24-hour inpatient care, but do require health maintenance and restorative services. Some programs may offer special services for individuals with diagnosed Alzheimer's disease. Adult Day Health Services are located in health care facilities such as nursing homes and hospitals, and serve clients five days/week for up to 7 hours/day. Call your local AAA for information.

I think the elderly man who lives next door to me may be the victim of fraud, abuse or neglect.  How can I get help for him?

The Adult Protective Services Program (APS) includes the 24 hour, 365 day a year capacity to accept reports of possible adult abuse. The report will either be referred to an appropriate authority, or investigated to assess the needs presented by the situation. APS is a service available to New Jersey residents living in New Jersey who are 18 or older and may be at risk. Contact the APS Agency in your community, or the local AAA immediately if you suspect adult abuse. You may also call the Division of Aging and Community Services, Information and Referral toll free number at 1-800-792-8820.

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Transportation

My dad is still able to drive but needs a disabled license plate so that he can park closer to building entrances.  How can he get such a plate?

Under New Jersey law, a disabled person may obtain either a special license plate or vehicle placard that provides special parking privileges. To obtain the request form that must be certified by a physician or podiatrist, call Motor Vehicle Commission toll free at 1-888-486-3339 or 609-292-6500.

Can senior citizens get a discount on New Jersey transit buses and trains?

Senior citizens between age 62 and 64 are eligible for New Jersey Reduced Fare Program paying no more than one-half the regular one way fare on most intrastate bus and rail lines, and most interstate bus and rail routes in New York, New Jersey and Pennsylvania from 9:30 AM to 4:00 PM and 7:00 PM to 6:00 AM weekdays, and all day on weekends and holidays. People 65 and older, or people with disabilities, have round-the-clock discounts for most routes. Either a Social Security card or program ID card will be required. Contact your local AAA for information.

I've seen buses in my town for seniors and people with disabilities.  How can I get a ride for my elderly dad to local stores and doctor's offices?

Casino tax revenues have been made available to support local para-transit services in the counties. Services may include door-to-door and fixed route service. Individuals 60 and over or individuals with disabilities may contact your local AAA or the website for New Jersey Council on Special Transportation for information.

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Legal & Regulatory Services

My sister and I are going to be managing our mom's affairs now that her Alzheimer's disease has progressed.  What options do we have to make decisions for her legally?

You and/or your sister can be appointed by a court to be your mother's guardian or conservator.

Guardianship allows you to manage a person's financial and/or personal affairs because the person is not able or competent to do so.  Conservatorship would give you either specific or wide-ranging powers over your mother's property only.  For example, power can range from check cashing to selling property. Conservatorship can be used for people who cannot make financial decisions, but can manage other personal decisions.

What does the Office of the Public Guardian do?

The Office of the Public Guardian provides guardianship or conservatorship services of last resort to adults who are at least 60 years old, and have no willing and appropriate family member or friend who can serve in that capacity. The Public Guardian may be appointed as either conservator for competent adults who require assistance with financial and proprietary affairs, or as guardian for those deemed mentally incompetent. The OPGEA provides case management as well as legal and financial management.

What is power of attorney or durable power of attorney?

In New Jersey, any person of capacity, 18 or older, can designate another person to serve as Power of Attorney to act on his/her behalf. Power of attorney can be limited to certain specific responsibilities or it can cover large general areas of decision-making regarding financial affairs. It is best to work with an attorney to make the arrangement as precise but as flexible as needed. The individual does not give up decision-making power with a signed power of attorney. He/she has simply named an agent who has the authority to act under circumstances as outlined in the power of attorney document. Should the individual become incompetent, the agreement will continue (be durable) unless specifically prohibited in the original agreement.

What are living wills (also known as advance directives)?

An Advance Directive is a written document that may be used under certain circumstances to tell others the care one would like to receive or not receive in the event one becomes incapacitated. A living will is a form of advance directive.

Where can I get legal assistance for my elderly parents?

Legal Aid for persons 60 and older who have legal problems is funded through your local AAA. Assistance is provided in priority cases, and to those with the greatest social and economic need.  The AARP Legal Services Network (LSN) is a member benefit providing easy access to attorneys across the country who reduce their fees for AARP members and their spouses.  In addition, many lawyers today specialize in legal planning needs of the older adult. These elder law attorneys help with estate and lifetime planning, asset protection planning and financial planning.  Your local bar association will have a list of attorneys specializing in this area of law.

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Caring for Adults Who Do Not Live at Home or Need Alternatives to Living at Home

What are some of the housing options available for seniors in New Jersey?

There are many housing alternatives available for the older population. Health supervision will vary from 24 hours to minimal, depending on the type of facility and the regulations that pertain to the particular patient population served by the facility.

Which housing options are for older people who can live independently?

Independent senior housing consists of self-contained apartments designed to promote independence yet provide common space and activities. Independent senior housing units are available in many communities throughout New Jersey.

Retirement communities provide a wide spectrum of care from independent living arrangements to skilled nursing facilities. Major retirement housing categories include active adult retirement communities, congregate housing, assisted living, and continuing care retirement communities.

Continuing Care Retirement Communities or life-care communities provide a wide spectrum of care from independent living arrangements to skilled nursing for individuals and couples for the remainder of their lives. These communities include independent apartments or homes, assisted living, and skilled nursing on the same grounds.

Which housing options are for people who need some assistance with activities of daily living?

Assisted Living Facilities provide a coordinated array of personal and health services, medication management and 24-hour supervision, if needed, in a home-like setting. Assisted living facilities in New Jersey are licensed by the Department of Health and Senior Services, and are available as a Waiver option or on a private-pay basis.

Comprehensive Personal Care Homes offer room and board, and assisted living services including assistance with activities of daily living, 24-hour supervision when needed, and medication management. These facilities, converted from other entities such as boarding homes, typically offer rooms to share. The New Jersey Department of Health and Senior Services licenses these facilities, and are available as a Waiver option or on a private-pay basis.

 Assisted Living Programs offer a package of assisted living services in some publicly-subsidized housing units, including personal care, medication management, and 24 hours supervision, when needed. The program is administered through an agency licensed by the New Jersey Department of Health and Senior Services, and is available as a Waiver option or on a private-pay basis.

Adult Family Care is a package of services including room, board and some health care for no more than three persons living in a home of an unrelated individual who has been trained and approved by a sponsor agency. The New Jersey Department of Health and Senior Services has licensed the sponsor agency, and is available as a Waiver option or on a private-pay basis.

The Congregate Housing Service Program provides some supportive services to low-income frail elderly who live in selected subsidized housing facilities. The services include meals, housekeeping, personal assistance and service coordination. Service subsidies are available.

What housing options are there for people who need frequent or full-time assistance and supervision?

Hospice programs provide management of terminal illness and support and bereavement care for the family through the use of an interdisciplinary team of doctors, nurses, paraprofessionals, social workers, clergy, and volunteers. The services may be provided in a participating hospital, in a free-standing hospice facility, or in the home. The New Jersey Department of Health and Senior Services licenses hospice programs. Contact your local AAA for more information.

Community-based acute care hospitals provide short-term inpatient health care to residents of New Jersey.

There are approximately 350 skilled nursing facilities in New Jersey. They provide physician-ordered medical services and supervised nursing care on a 24-hour basis for persons who do not require acute care hospitalization, and whose needs can be met only through inpatient care in a long-term care facility. The New Jersey Department of Health and Senior Services licenses Long Term Care facilities. Contact your local AAA for more information.

Rehabilitation Hospitals provide a multidisciplinary approach to the delivery of patient care. The treatment team may include physicians, nurses, physical therapists, occupational therapists, speech therapists, respiratory therapists, social services, psychological services and orthotic/prosthetic services. Nursing care is available 24-hours a day. Therapies are provided throughout the day with each patient receiving a minimum of three hours of therapy a day. Contact your local AAA for more information.

Who regulates hospitals, nursing homes, assisted living residences and other facilities for seniors?

The New Jersey Department of Health and Senior Services, through the Division of Health Facilities Evaluation and Licensing licenses and inspects many acute and long-term care facilities, including all hospitals, nursing homes and assisted living facilities. Yearly survey visits and periodic monitoring visits provide a mechanism by which compliance with both federal and state regulations are assessed and licenses are renewed.  If you have a complaint about a New Jersey health care facility, call the department at 1-800-792-9770.

Who responds to reports of abuse, neglect or exploitation of seniors living in nursing homes and other long-term care settings?

The Office of the Ombudsman for the Institutionalized Elderly receives complaints made on behalf of people 65 and older and who are consumers of long term care services. The office works with all parties to resolve problems, while protecting consumer's privacy, confidentiality and rights. In addition, the Ombudsman provides information on resident rights, and oversees ethical decision-making in long term care facilities.

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Support Groups and Support Services

My family is having a very hard time dealing with the stress of caregiving.  Can we participate in counseling?

Counseling services are generally provided to caregivers by individuals trained in social and interpersonal relations. This service is designed to assist caregivers in adjusting to the change in personal roles, and in learning effective tools for controlling personal and family stress. Call your local AAA for information.

Are there any support groups specifically for caregivers?

Children of Aging Parents is a non-profit organization dedicated to assisting adult children and their aging parents. From its beginning as a self-help group, CAPS has grown into a national clearinghouse of information on elderly parent issues and resources for help. It also offers informational printed materials and video tapes.  In addition, there are several support groups operating throughout the state for family members whose relatives have Alzheimer's disease. Group members share coping techniques for handling the decrease in functioning of Alzheimer's patients. Contact the Greater New Jersey Chapter, the Delaware Valley Chapter, or your local AAA for more information.

Where can I find a support group of individuals facing the same issues that are confronting me and my family, be it alcoholism, victims of crime, or stroke survivors?

The New Jersey Self-Help Clearinghouse was founded to increase awareness, utilization, development and understanding of mutual aid self-help groups to help reduce suffering and isolation for the caregiver, and provides extensive data on self-help and support groups serving all areas of New Jersey.

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Help with Disability Issues

What services are available for younger adults with disabilities and their caregivers?

The New Jersey Department of Human Services works in partnership with families, consumers, advocacy groups, service providers and state and municipal officials throughout the state to ensure that the rights of people with disabilities are protected and that they and their families have access to quality programs and services that meet their needs. Services include, but are not limited to, the provision of health care for people with special needs, community living, employment-related and day programs, community-based mental health and in-patient care for both children and adults with emotional and behavioral problems, and assistive technological devices for people who are blind or deaf. For more information, visit the Division of Disability Services website, or call the division toll-free at 1-888-285-3036.

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