This publication is based on data reported to the New Jersey State Cancer Registry (NJSCR). The NJSCR was established by legislation (NJSA 26:2-104 et seq.) as a population-based incidence registry and includes all cancer cases diagnosed among New Jersey residents since October 1, 1978. The NJSCR serves the entire State of New Jersey, with a population of approximately eight million people.
New Jersey regulations (NJAC 8:57-A) require the reporting of all newly diagnosed cancer cases to the Registry within three months of hospital discharge or six months of diagnosis (whichever is sooner). All primary malignant and in situ neoplasms are reportable to the NJSCR, except certain carcinomas of the skin. Additionally, beginning with the 1995 diagnosis year, cancer in situ of the cervix was no longer reportable based on recommendations by a New Jersey panel of experts and the North American Association of Central Cancer Registries. Reports are filed by hospitals, diagnosing physicians, dentists and independent clinical laboratories. In addition, reporting agreements are maintained with New York, Pennsylvania, Delaware, Florida and North Carolina so that we may collect reports of cancer among New Jersey residents diagnosed with cancer in health care facilities outside the state. Legislation in 1996 strengthened the Registry by (1) requiring electronic reporting, (2) requiring abstracting by certified tumor registrars, and (3) establishing penalties for late or incomplete reporting.
The information collected by the NJSCR includes demographic characteristics of the patient, and medical information on each cancer (such as anatomic site, histologic type and summary stage of disease). Annual follow-up status (alive/dead) and, when the patient is deceased, the underlying cause of death are incorporated into the basic data set.
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