Sickle Cell Disease on the Internet

The Internet is a very useful source of information about sickle cell disease. There are hundreds of web sites devoted to this topic. Many of these sites provide information about sickle cell disease including commonly asked questions, complications of the disease, treatments and potential cures. There is information about the STOP study, hydroxyurea, and bone marrow transplant (see other sections of this manual). Some web sites will provide you with lists of organizations that have more information about sickle cell disease or can put you in contact with other persons who have sickle cell anemia.

If you want to go directly to a specific web site, here are a few of the more interesting ones. Please be sure to type them exactly as they are written here.

• www.emory.edu
  
• www.wellweb.com
  
• www.babynet.ddwi.com
  
• www-rics.bwh.harvard.edu
  
• www.defiers.com/link.html

If you want to explore on your own, use one of the search engines (e.g. EXCITE, YAHOO, WEBCRAWLER) and search the term: "Sickle Cell Anemia". You will come up with a number of matches that will start you on your search for topics related to sickle cell disease.

Web sites often share common information so that after searching a few sites, you will probably encounter much repeated information.

Some of the doctors and nurses at the Sickle Cell Treatment Centers can guide you through the steps needed to gain access to this service. Some public libraries, colleges and high schools have computers with Internet access and may be able to assist you in your search.