TRENTON - Governor Phil Murphy today signed S4141, also known as “Paul’s Law”, which will authorize parents or guardians to request the use of an individualized health care plan for students with epilepsy or seizure disorders. The law is named after Paul St. Pierre, a 13-year-old boy from Maple Shade who has epilepsy and advocated for the legislation.
“Every student deserves to learn and thrive in their educational environment, without worrying about their safety.” said Governor Murphy. “Paul’s Law will ensure that the safety of children with seizure disorders is a priority in our schools. I thank Paul and his family for bringing attention to this issue that affects so many parents and children across our state.”
The legislation signed today authorizes a parent or guardian of a student with epilepsy or a seizure disorder to request use of an individualized health care plan. This individualized health care plan will be developed for each student by the school nurse, in consultation with the parent or guardian of a student with a seizure disorder and other appropriate medical professionals. The plan will be consistent with the recommendations of the student's health care providers and will outline a set of procedural guidelines that provide specific directions about what to do in an emergency. Additionally, boards of education will be required to ensure that all building staff are trained in the care of students with epilepsy and seizure disorders.
“It is impossible to describe the magnitude of Governor Murphy signing Paul’s Law. This law will not only help my son Paul feel safe in school, it will protect 12,000 children in New Jersey that have epilepsy. Furthermore, It will give parents across the state peace of mind while their children are in school,” said Paul St. Pierre, the namesake of the law, and his mother, Colleen Quinn. “None of this would have been possible without Senator James Beach who spearheaded this legislation after our initial meeting. He has shown us that citizens, even a 13 year old boy can help to make change in the world. We are forever grateful to him. Lastly, we would like to thank Governor Murphy for signing this legislation into law. Today our governor has made New Jersey only the 5th state in the nation to create seizure safe schools. We would like to thank Governor Murphy for making this law a reality.”
“Schools must provide safe spaces for all children, including students who experience seizure disorders,” said Dr. Lamont O. Repollet, Commissioner of Education. “Providing training to staff will enable adults to recognize the early signs of seizures in students and provide them with swift access to the care they need.”
“Approximately 12,000 children in New Jersey have been diagnosed with epilepsy, according to the U.S. Centers for Disease Control,” said Department of Health Acting Commissioner Judith Persichilli. “Paul St. Pierre is a brave young man and I commend him for his advocacy to help protect other children with this neurological disorder. It is critical that teachers, principals and other school personnel receive training in how to recognize and respond to a student experiencing a seizure in school. It’s also important for parents to ensure their child’s school has an up-to-date heath plan for their child.”
Primary sponsors of the legislation include Senators Jim Beach and Kip Bateman, and Assemblymembers Mila Jasey, Annette Quijano, and John McKeon.
“As a former teacher, I know that an unexpected crisis can occur at any time during the school day. However, if a student has a seizure disorder, appropriate training, complete information and an individualized health care plan can allow school personnel to be better prepared,” said Senator Beach. “Thanks to the advocacy of Paul St. Pierre, this legislation will go a long way in educating our teachers and school personnel on how to handle a situation when one of their students has a seizure, whether it is in the classroom or at an after-school event.”
“There are 12,000 students throughout New Jersey with a seizure disorder,” said Senator Kip Bateman. “If you’re the parent of a child with epilepsy, you want to be assured that all teachers, nurses, and school bus drivers are properly trained and can care for your child until advanced medical help arrives. I applaud Paul for his successful advocacy to ensure Garden State schools have the tools to create a ‘seizure smart’ epilepsy action plan which will save lives.”
In a joint statement, Assemblymembers Jasey, Quijano, and McKeon said:
“It’s vitally important that New Jersey’s schools and teachers are well-equipped with the tools and knowledge to provide safe, enriching learning environments for students with epilepsy.
“In creating the mechanisms for schools to work with parents and guardians alongside nurses, teachers and administrators, children suffering from seizures would be guaranteed the extra support and care they need to see their full potential in the classroom realized.
“We’d like to give special thanks to Paul St. Pierre, who the bill is named for, and Miranda West, a Columbia High School student and National Epilepsy Foundation teen spokesperson, for their continued advocacy and help in ensuring New Jersey schools are safe for all students.”
“Paul St. Pierre is a leader and a role model for all children living in New Jersey. Paul’s advocacy not only for himself, but for the 12,000 children living with epilepsy in the Garden State, will make our schools a safer place for all children living with epilepsy,” said Liza Gundell, CEO of the Family Resource Network which includes Epilepsy Services of New Jersey. “Children spend the majority of their day in school under the care of school personnel and in the company of their peers. Empowering educators and students with knowledge to not only recognize seizures, but the skills to act and treat a student who may be experiencing a seizure can ultimately save a child’s life. Epilepsy Services of New Jersey is proud to provide monthly on-line seizure first aid and recognition training, as well as in-person training for school’s throughout New Jersey. Paul’s Law ensures that all New Jersey Schools are well-equipped with the tools necessary to provide a safe and enriching environment.”