Cancer Surveillance Research Program

The Cancer Surveillance Research Program (CSRP) at Cancer Epidemiology Services (CES) encourages research use of New Jersey State Cancer Registry (NJSCR) data for the purpose of determining the incidence and etiology of malignant neoplasms and/or evaluating measures designed to eliminate, alleviate, or reduce the impact of cancer. CSRP collaborates with many researchers to facilitate cancer research using the NJSCR. If you are a researcher interested in conducting an epidemiologic study using NJSCR data, please contact us for more information, and prior to submitting an Institutional Review Board (IRB) request.

Level A: Aggregate data
Level B: Individual level data; no patient contact
  • Individual record level data required for linkage studies or data analysis that DOES NOT involve patient or family contact 
  • Are you interested in national data linkages or linkages involving more than one cancer registry?  Visit for more information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS)
Level C: Individual level data with patient contact
  • Individual record level data required for research that DOES involve patient or family contact 
  • First contact of the patient MUST be made by NJSCR staff
How to Request Level B or C data
  • NJSCR data are provided only to researchers with studies that meet stringent requirements for scientific merit and handling of confidential information.
  • Please plan ahead to allow adequate time for the approval process.  Due to the high volume of requests and staffing shortage, please allow 6-9 months for the approval process.
  • Contact us first to discuss your study.  We will review your protocol to make sure that your scientific question can be answered using NJSCR data.
  • A cost estimate will be provided.
  • Each study will need the following approvals before the data are released:
    1. CSRP Approval
    2. Approval from Rutgers Cancer Institute Scientific Board (SRB)
    3. Approval from Rutgers Cancer Institute Institutional Review Board (IRB)
    4. Signed Contract/Data Use Agreement with budget
Last Reviewed: 10/29/2024