This program is part of

Partnerships and Support


Birth Defects Registry

Program Description

The Birth Defects Registry is a population-based registry of children with specific birth defects. It serves as the primary entry point into the local, community-based case management system of the Special Child Health and Early Intervention Services Program. 


 History and Purpose

The NJ Birth Defects Registry was established in 1928 as the “Crippled Children’s Commission” and is the nation’s first birth defects registry. Since 1985, New Jersey has maintained a population-based registry of children with specific birth defects, including metabolic, genetic, and hearing disorders excluded by most other state registries. (Read more)

Preventing Birth Defects

While not all birth defects can be prevented, you can reduce the risk of some birth defects with these healthy tips. Please click on the link below if you plan to or may become pregnant. 

Healthy Tips


Contact Us

Please email us: or call us at (609) 292-5676

State Administrator Contact
Lisa M. Stout, BSN, RN
Nursing Consultant 
Family Health Services 
Early Identification and Monitoring 
New Jersey Department of Health
PO Box 364
Trenton, New Jersey 08625-0364

Phone:  (609) 292-5676


Last Reviewed: 2/27/2023