There are approximately 900-1,200 New Jersey residents with Huntington’s disease (HD). The incidence of HD is estimated between 1 in 8,000 and 1 in 10,000 state residents. There are also about 7,000 at-risk individuals in New Jersey, some of whom seek services including clinical examinations, genetic testing, prenatal diagnosis and genetic counseling.

There are three Huntington's disease programs in New Jersey, located in Newark, Piscataway, and Stratford. Their services include community outreach, home visits, nursing home/rehabilitation services, and inpatient care.

There are two long-term care facilities; the Hartwyck Center (Plainfield, NJ), and the Leisure Chateau (Lakewood, NJ). The duration of stay in a long-term facility can range from 3 months to 20 years.